Getting ready to host the host the last Official Committee meeting for the LA WALK. I can’t believe we are literally 2 weeks away! I am very proud and blessed to work beside a wonderful Committee who is passionate about the Autism Speaks mission and our families getting the help they need. We look forward to showing you all the pictures this morning as they show off their new Committee shirts for the WALK!
Social Media Manager
6 years with Autism Speaks - Los Angeles
13 year old son with autism
In honor of the 10th Anniversary of our Walk, I’ve decided to format this as 10 questions. I love you MonkiChu!
I have been touched by Autism in these 10 Ways:
1. Do you have a son or daughter with autism?
My son; QuinnM, self proclaimed Video Game Master, Boy Scout and YouTube poster of all things Mario & Nintendo!
2. When was he/or she diagnosed?
He was a little over 3 years old. It was all at the behest of his mother. All credit to her.
3. What was the first word you thought of when you found out?
4. Who was the first person you called?
My brother VicM, of course.
5. Did you know about autism before your child was diagnosed?
I had seen “Rain Man” of course, but above and beyond that I only knew that it was a neurological condition.
6.How did you get involved with Autism Speaks?
The first year I had any contact with the Walk or the organization, me and my wife did a reconnaissance mission by not registering for the Walk, but just walking the booths and taking in the community that was the Walk
So the next year I went to one of the Los Angeles “launch” events at a Hollywood studio, which promised free food, and listened to to the parents and volunteers gush about how much they got out of it.
During the course of events, I was approached by one of my many autism mentors, Priscilla P. and was basically recruited as a parent volunteer. Since then, I have served as an Inland Empire ambassador, a liaison to the Latino community and finally, Social Media Manager.
7. When did you tell your family?
Right away, though the Hispanic/Latino side of my family needed a lot more “splaining Lucy”.
8. What did you and your spouse do when you both found out?
Actually I went back to work in total shock and disbelief. Finished my day, then went to Barnes and Noble and bought every book on the subject. It was then that I called my brother from my car from that parking lot and just started sobbing in torrents. Picked myself up, went home and tried to console Quinn’s equally devastated mother. Good times…LOL!
9.Were or are you nervous when talking about autism and your child to people that you do not know? Do you feel that you have to explain your child’s behavior? How does that make you feel?
It has not really been an issue as most people are very understanding, and because of his high functioning diagnosis, it does take a while for them to catch on at first, making getting into that conversation a lot easier.
I love talking about autism. It makes me feel proud actually. New problem though: he does not wanting me to tell anyone about his condition. Conundrum?
10. What beautiful qualities does your child have that you wish everyone could know about?
How brave that young man is everyday. Me, myself, I’m not that brave and I honestly don’t know many people who are. Everyday my son wakes up and has to deal with his world AND the world we push him to live in as typically as he can. Most of that time, the world ain’t all smiles and pink fuzzies.
…some of the wonderful ladies of the AS-LA Communications Committee; Kait M., Jess B., Pam E. and Sheila B.
This was a taken in front of one of our Community Sponsors, the Double Tree Hotel in Claremont, CA, which was nice enough to donate one of their conference rooms for our meetings.
Welcome to the new Autism Speaks Los Angeles Tumblr!
This new page is here to share the stories of hope an inspiration that drive our committee and volunteers to be involved.
I’ll start, this is a guest post from Jess, the Communications Committee Chair.
I volunteer because just today was my son’s 6th IEP in as many months.
What inspires and drives you to walk at the Los Angeles walk?
Please send us your pictures and tell us your stories!